Resource Library

Resources to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.

Health Insurance Flight Plan

A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.

Clinical Trial Flight Plan

This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.

Clinical Trial Cheat Sheet

For a quick look at enrolling or soon to be enrolling investigational drug studies in Duchenne and their enrollment criteria, check out Jett Foundation's Clinical Trial Cheat Sheet.

Thriving With Duchenne Episode with Two Disabled Dudes Podcast

Families, Female Carriers, Individuals, Medical Professionals

A Rare Disease Day podcast recording from the Two Disabled Dudes, Kyle Bryant and Sean Baumstark, who moderated Jett Foundation's 2024 Rare Disease Day event.

Physicians Who Treat Female Carriers of Duchenne

Female Carriers, Medical Professionals

A resource list of known physicians in the United States who treat and care for female carriers of Duchenne muscular dystrophy.

Duchenne Muscular Dystrophy Diagnosis and Care

Medical Professionals

PediaLink provides a course highlighting the specialty care and emerging therapies related to the care and management of DMD as well as the common issues affecting children with DMD and...

DMD Webinar Series from American Academy of Pediatrics

Medical Professionals

Through this webinar series, clinicians will be better informed about care consideration and emerging therapies related to the care and management of individuals with DMD

Overjoyed About Accessibility

Families, Individuals, Medical Professionals

Overjoyed is a new way to create and play digitally turning small mouse movements into key presses and other actions, allowing even people with low to no dexterity or movement...

Gene therapy has made significant strides in Duchenne muscular dystrophy, with one therapy approved and other potential therapies in various stages of development. PPMD’s resources aim to empower and inform...

Welcome Packet

We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend, to learn more about Duchenne and available resources.