The Jett Foundation Fighting Duchenne Muscular Dystrophy

Jett Giving Fund

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Jett Foundation established the Jett Giving Fund to assist families affected by Duchenne muscular dystrophy in purchasing unaffordable, but vital medical and accessibility equipment.

What is Duchenne? Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function, and ultimately premature death. Duchenne affects every 1 in 3,500 live male births and some females, and has no cure. Children with Duchenne are born seemingly healthy and decline over time, usually losing their ability to walk around the age of 12 and succumbing to the disease in their early to mid-twenties.

How does this program work? Jett Giving Fund applicants will raise 50 percent of cost of the item they need for the Jett Giving Fund. In turn, the Jett Giving Fund, through the support of generous corporate and individual donors, will match the remaining 50 percent and purchase the piece of equipment or accessibility item the family needs.

How can you help? Generous corporate sponsors make this program possible. To join sponsors like ProBed, and organizations like 2 Smiles 1 Hope, and Suneel’s Light please see the Jett Foundation Sponsorship and Information Packet here or email Jen Shadrick at jettgivingfund@jettfoundation.org.

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Want to Apply? Jett Giving Fund is accepting applications. Your family’s acceptance into the program is based upon the availability of the Jett Giving program’s funds. Please email Jen Shadrick at jettgivingfund@jettfoundation.org  to start the application process.


Our Inspiration:

Health insurance often won’t cover all specialized medical and accessibility equipment such as scooters, shower chairs, ramps, rotational beds and accessible vans; items needed when suffering from a progressive muscle-wasting disorder. Without these necessities, those with Duchenne struggle to participate in the kinds of activities that most people take for granted, such as getting to and from school, or going to the mall with friends. Please take the time to read about Austin Wilcher and Max Gaudenzi who have successfully applied to the Jett Giving Fund.

 

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$50,000 – Turning Bed We were denied by our private health insurance to get a hospital bed with an alternating pressure mattress…  I have been saving money for 3 years and I have raised nearly half the money I need for this bed – the  Jett Giving Fund would be an answer to our prayers.”

mechanical-arm-image$4,000 – Mechanical Arm “My son has lost all function in his hands and arms. New technology has come up with mechanical arms would give him the ability to feed himself, pick up a cup and even scratch an itch.  These routine activities may sound small but would make a world of difference for my son.”

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$60,000 – Accessible Van

As Duchenne has continued to weaken my sons body, it’s now necessary for him to use a power wheelchair full time. The power wheelchair must be transported in a specially modified vehicle. A handicap accessible van would let me transport him to doctors appointment and help keep him active and engaged so that he does not become isolated and depressed at home.”

Your contribution to this fund is tax deductible, to the extent allowed under applicable law, and is an unrestricted contribution to the Jett Giving Fund.  Your contribution will be combined with other donations to ensure that every family in need of essential items will benefit from your generosity.

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