The Jett Foundation Fighting Duchenne Muscular Dystrophy

Take a stand. Fill a seat. Raise your voice. We are waiting for the new Ad Comm date to review eteplirsen. This is a historical moment for our entire Duchenne community. Thanks to all who have been working so hard. We will be back. Stay tuned for how to sign up and attend for free.  #MakeDuchenneHistory

Thanks to everyone who made our Freedom Favors The Bold whiskey tasting event a huge hit! Your support helps us further research efforts, educate and advocate for our community, and run programs for boys with Duchenne. To donate today, click here.

Save the date! Join us for our annual Golf Classic fundraiser on Wednesday, June 1, 2016. For more information, click here.

Looking for a team to join or a race to put your New Year’s resolution into action? Join one of our triathlon teams and get ready for 2016! For more information about joining our Tri for Jett or Gals For Cal, click here.

Are you looking for an accessible summer camp option for your child? Camp Promise is our FREE overnight camp for people of all ages with muscular dystrophy and select neuromuscular diseases. For more information, click here.

Our Mission

The mission of the Jett Foundation is to increase worldwide awareness of Duchenne muscular dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for this fatal disease and programming that will ensure children with Duchenne have the opportunity to enjoy a full life.

Stay in Touch

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Upcoming Events

Join us March 7th – Cooking for a Cause

Celebrity Chefs and Bakers Unite for The Jett Foundation Monday, March 7th, 6 – 10 PM Tickets $100 Yale Appliance- 296 Freeport St, Dorchester, MA GET YOUR TICKETS TODAY! Join The Jett Foundation for an evening of inspirational bites, wine tastings and cake samplings. The following chefs are donating their time and talent to prepare […]

Blog

Letter to FDA Urging New AdComm Date

February 9, 2016

February 8, 2016 Janet Woodcock, Director FDA Center for Drug Evaluation and Research 10001 New Hampshire Avenue, Hillandale Building, 4th Floor Silver Spring, MD 20993 William Dunn, Director FDA Division of Neurology Products 10903 New Hampshire Avenue, Building 22, Suite 4346 Silver Spring, MD 20993   Dear Dr. Woodcock and Dr. Dunn: This morning, the […]