The Jett Foundation Fighting Duchenne Muscular Dystrophy

FDA Approval of eteplirsen, September 19, 2016. This is the first therapy for the treatment of Duchenne granted Accelerated Approval by the FDA.   Click here to learn more.

Thanks to everyone who made our Cooking for a Cause event a huge hit! Your support helps us further research efforts, educate and advocate for our community, and run programs for boys with Duchenne. To donate today, click here.

Save the date! Join us for our annual Golf Classic fundraiser in June, 2017. For more information, click here.

Looking for a team to join or a race to put your New Year’s resolution into action? Join one of our triathlon teams and get ready for 2016! For more information about joining our Tri for Jett or Gals For Cal, click here.

Are you looking for an accessible summer camp option for your child? Camp Promise is our FREE overnight camp for people of all ages with muscular dystrophy and select neuromuscular diseases. For more information, click here.

Save the Date for Jett Foundation’s Fist Annual “Shine a Light on Duchenne” Gala.  Thursday January 26, 2017 To Learn More

Our Mission

The mission of the Jett Foundation is to increase worldwide awareness of Duchenne muscular dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for this fatal disease and programming that will ensure children with Duchenne have the opportunity to enjoy a full life.

 

 

 

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Jett Foundation
Jett FoundationSaturday, February 18th, 2017 at 3:31am
Jett Foundation Requests Marathon Convene a Meeting of Stakeholders to Discuss Re-evaluation of Deflazacort Pricing

http://jettfoundation.org/blog/jett-foundations-requests-marathon-pharmaceuticals-convene-a-meeting-of-stakeholders/
Jett Foundation
Jett FoundationWednesday, February 15th, 2017 at 6:56am
Happy Valentines Day from the Jett Giving Fund....
We would LOVE for all kids with Duchenne to be able to have access to safe transportation to see their friends, go to school, get to appointments, and have a better quality of life.
http://jettfoundation.org/givingfund/

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Upcoming Events

Save the Dates – Educational Roundtables; Feb 11th in Long Island and March 4th in New Orleans

All are welcome to attend Jett Foundation’s FREE roundtables that bring resources and information on treatment options and clinical trials directly to families affected by Duchenne. Jett’s next two roundtables are on Feb. 11th in Long Island, NY and on March 4th in New Orleans, LA. Check out our website for more dates and locations!    

Blog

Shine a Light on Duchenne Gala – Thank you!

February 2, 2017

  This sold-out event was filled with families, friends, advocates, industry partners, and corporate sponsors, and we could not be more grateful. Click here for photos of this special evening. Our honorees of the evening, Cindy Quitzau, Bill Brett and The Flatley Foundation were acknowledged for their ability to inspire those around them, their hearts of gold, and their […]

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