The Jett Foundation Fighting Duchenne Muscular Dystrophy

FDA Advisory Committee Meeting, April 25th. We made Duchenne history by changing forever the way patient input is considered by the FDA and the drug development world. The world is watching to see the FDA decision on May 26th.  Click here to learn more. #MakeDuchenneHistory

Thanks to everyone who made our Cooking for a Cause event a huge hit! Your support helps us further research efforts, educate and advocate for our community, and run programs for boys with Duchenne. To donate today, click here.

Save the date! Join us for our annual Golf Classic fundraiser on Wednesday, June 1, 2016. For more information, click here.

Looking for a team to join or a race to put your New Year’s resolution into action? Join one of our triathlon teams and get ready for 2016! For more information about joining our Tri for Jett or Gals For Cal, click here.

Are you looking for an accessible summer camp option for your child? Camp Promise is our FREE overnight camp for people of all ages with muscular dystrophy and select neuromuscular diseases. For more information, click here.

Our Mission

The mission of the Jett Foundation is to increase worldwide awareness of Duchenne muscular dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for this fatal disease and programming that will ensure children with Duchenne have the opportunity to enjoy a full life.

 

 

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The Jett Foundation
The Jett FoundationSunday, August 28th, 2016 at 9:13am
Thank you Kate Perkins for this great pic of your "beautiful Duchenne Warrior" Jayden in front or our billboard in Times Square, New York City! Have your friends like our page and like your pic for a chance to win an L.L.Bean jacket! #jettfoundation #hourglass
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The Jett Foundation
The Jett Foundation shared their post.Saturday, August 27th, 2016 at 9:53am
Everyone is invited to join #JettFoundation in spreading awareness for #DMD #Duchenne during #WDAD2016 at #DuchenneCambridge on September 7th!
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Stay in Touch

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Upcoming Events

Join us – Duchenne Awareness Day on September 7th

What? On Wednesday, September 7th, please join Jett Foundation and the Duchenne Community in celebrating World Duchenne Awareness Day, by alighting the Charles River with red to symbolize our community’s commitment to providing safe and effective treatments for those affected by Duchenne. We invite ALL who are impacted by Duchenne to attend- patients and their […]

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WSJ – Boys Not Statistics

July 8, 2016

Boys, Not Statistics A drug for muscular dystrophy works better than we reported. Jack Willis, center, Nolan Willis, right, and Max LeClaire, bottom, attended the opening for Sarepta Therapeutics global headquarters in Cambridge on June 2, 2014. Jack Willis, center, Nolan Willis, right, and Max LeClaire, bottom, attended the opening for Sarepta Therapeutics global headquarters […]

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