The mission of the Jett Foundation is to increase worldwide awareness of Duchenne muscular dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for this fatal disease and programming that will ensure children with Duchenne have the opportunity to enjoy a full life.
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Want to learn more about clinical trials and how to add your input and voice to the drug development process? Here is your opportunity. Join us for a day of education, all at no cost to families/caregivers! We also provide child-care if you need it. For early registration, email firstname.lastname@example.org. 2016 Dates Princeton, New Jersey Jan […]
November 25, 2015
Yesterday, Jett Foundation was part of the first Duchenne ADCOM experience in history. The first of many in the near future, we hope. We are honored to be part of this resilient Duchenne community. While the outcome of Biomarin’s Advisory Committee is still unknown, the FDA will inform the company of their decision by the December 27th PDUFA deadline. […]