The Jett Foundation raises awareness of and funds for the research and treatment of Duchenne muscular dystrophy in order to create new resources for families affected by Duchenne and to find a cure for the disease. Find out more >
Upcoming Events
JettRide 2013
Jun 6, 2013
It’s that time of year again! Jett Foundation will be sending out a team of teenage riders – those who have family members affected by Duchenne. Duchenne is devasting. Boys with Duchenne lose their muscle function and their independence. Their parents and siblings lose any sense of a normal life, Instead, siblings live with guilt [...] Read more >
Blog
Those diagnosed with Duchenne Do NOT Get Better…
Jun 6, 2013
Those who have been following my blog know that myself and several other moms (Jenn McNary and Mindy Leffler) have been meeting the FDA on a regular basis to discuss eteplirsen (Sarepta Therapeutics) and accelerated approval. In accordance with FDAISA, the FDA has taken an active role in listening to us, and for the first [...] Read more >