The mission of the Jett Foundation is to increase worldwide awareness of Duchenne muscular dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for this fatal disease and programming that will ensure children with Duchenne have the opportunity to enjoy a full life.
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Who doesn’t need a good laugh? Please join us for some good fun for a great cause! Who: Lenny Clarke along with 6 other hilarious comedians When: Friday October 14, 2016 7pm Where: Plymouth Memorial Hall, 83 Court Street, Plymouth, MA All Proceeds will benefit the Jett Foundation and our new First Giving JettAbility […]
September 28, 2016
On September 19, 2016, the FDA granted accelerated approval for eteplirsen, making it the first approved therapy for Duchenne muscular dystrophy. This historic approval has been the focus of many news items, below are some news coverage that highlights Jett Foundation’s advocacy efforts and impact. Published September 24, 2016 For one mother bittersweet victory, long […]