The Jett Foundation Fighting Duchenne Muscular Dystrophy

FDA Advisory Committee Meeting, April 25th. We made Duchenne history by changing forever the way patient input is considered by the FDA and the drug development world. The world is watching to see the FDA decision on May 26th.  Click here to learn more. #MakeDuchenneHistory

Thanks to everyone who made our Cooking for a Cause event a huge hit! Your support helps us further research efforts, educate and advocate for our community, and run programs for boys with Duchenne. To donate today, click here.

Save the date! Join us for our annual Golf Classic fundraiser on Wednesday, June 1, 2016. For more information, click here.

Looking for a team to join or a race to put your New Year’s resolution into action? Join one of our triathlon teams and get ready for 2016! For more information about joining our Tri for Jett or Gals For Cal, click here.

Are you looking for an accessible summer camp option for your child? Camp Promise is our FREE overnight camp for people of all ages with muscular dystrophy and select neuromuscular diseases. For more information, click here.

Our Mission

The mission of the Jett Foundation is to increase worldwide awareness of Duchenne muscular dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for this fatal disease and programming that will ensure children with Duchenne have the opportunity to enjoy a full life.

 

 

Facebook Feed

The Jett Foundation
The Jett FoundationWednesday, June 29th, 2016 at 8:10am
#jettfoundation looking for ethical paths forward in pediatric clinical trials #dmd http://twitter.com/fundDuchenne/status/747871085148934144
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The Jett Foundation
The Jett FoundationWednesday, June 29th, 2016 at 7:55am
Heading to the beach this summer? Jett Foundation has a Mobi Chair available for lending. If interested and able to pick up/drop off in Kingston, MA - call 781-585-5566 or email info@jettfoundation.org #jettfoundation #DMD #makeduchennehistory #duchenne
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Twitter Feed

Wednesday, June 29th, 2016 at 5:10am
#jettfoundation looking for ethical paths forward in pediatric clinical trials #dmd https://t.co/2QWKeTrP01
Wednesday, June 29th, 2016 at 1:58am
TY @Patriots for continued support and hosting our Duchenne Families at #PatsCamp! #jettfoundation @fundDuchenne https://t.co/AUz95rSjLm

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Stay in Touch

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Upcoming Events

Adaptive sailing camp

Are you still looking for an adaptive summer camp option in the Boston area? Join us for a FREE week-long adaptive sailing camp on the Boston Harbor! All ages and all abilities welcome. 

Blog

Christine McSherry OPH Testimony: April 25, 2016

May 3, 2016

My name is Christine McSherry. You heard from me this morning when I presented the Patient Reported Outcomes Report. Now, I’d like to speak with you as a mother and an advocate. My son Jett was diagnosed when he was five years old. Today he is 20. Jett took his last steps at the age […]

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