The Jett Foundation Fighting Duchenne Muscular Dystrophy

FDA Approval of eteplirsen, September 19, 2016. This is the first therapy for the treatment of Duchenne granted Accelerated Approval by the FDA.   Click here to learn more.

Thanks to everyone who made our Cooking for a Cause event a huge hit! Your support helps us further research efforts, educate and advocate for our community, and run programs for boys with Duchenne. To donate today, click here.

Save the date! Join us for our annual Golf Classic fundraiser in June, 2017. For more information, click here.

Looking for a team to join or a race to put your New Year’s resolution into action? Join one of our triathlon teams and get ready for 2016! For more information about joining our Tri for Jett or Gals For Cal, click here.

Are you looking for an accessible summer camp option for your child? Camp Promise is our FREE overnight camp for people of all ages with muscular dystrophy and select neuromuscular diseases. For more information, click here.

Save the Date for Jett Foundation’s Fist Annual “Shine a Light on Duchenne” Gala.  Thursday January 26, 2017 To Learn More

Our Mission

The mission of the Jett Foundation is to increase worldwide awareness of Duchenne muscular dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for this fatal disease and programming that will ensure children with Duchenne have the opportunity to enjoy a full life.

 

 

 

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Jett Foundation
Jett FoundationThursday, March 30th, 2017 at 5:43am
A big THANK YOU to MobilityWorks for writing about Ethan and his family! Jett Foundation is searching for more Jett Giving Fund corporate partners to help us help more kids like Ethan get the equipment they need.

Visit http://jettfoundation.org/givingfund/ to learn how YOU can help!
Jett Foundation
Jett FoundationThursday, March 30th, 2017 at 3:25am
Did you know that NS Pharma is currently enrolling a trial studying their exon 53 skipping agent NS-065/NCNP-01 in exon 53 skipping amenable Duchenne patients ages 4-9?

Want to learn more and live near Nashville, Tennessee? Register to attend Jett Foundation Nashville Roundtable this Sunday, April 2nd at the Nashville Union Station Hotel from 12pm-5pm to talk to Lauren Morgenroth, presenting on behalf of NS Pharma!

https://docs.google.com/a/jettfoundation.org/forms/d/11C9ZjsMBHs55Z0B0MZemNGWm9ZXKSI8DVnua5jC12Mw/edit#responses

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Upcoming Events

Register today for the Jett Golf Classic

It’s always sunny at the Jett Golf Classic. Sign up today for this year’s event on Monday June 5th at Black Rock Country Club. Enjoy a fabulous day of golf followed by a celebratory dinner with auctions, raffles and entertainment. Every dollar raised helps support the Duchenne community. Get your foursome together and be ready for a great […]

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Jett Foundation Helps Texas Duchenne Muscular Dystrophy Patient Through Jett Giving Fund

March 10, 2017

Garland, Texas – March 7, 2017 –Jett Foundation, a non-profit organization dedicated to raising awareness and funds for Duchenne muscular dystrophy, is helping a family from Garland, Texas to purchase a handicap accessible van through their new program, Jett Giving Fund. Aidan Braswell, a 12-year-old with Duchenne, and his family seek to raise half of […]

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