Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

Family

Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.

Donate

Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.

Volunteer

Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

Featured Programs

Jett Giving Fund

Jett Giving Fund offers families assistance through two main branches of support: the Accessible Vehicle Fund helps families obtain safe, accessible transportation; the Emergency Fund provides grants to families facing unexpected, emergency situations.

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

Upcoming Events

Event Date: March 28, 2024
Jett’s Community webinar Series featuring a panel discussion on PJ Nicholoff’s Steroid Protocol.
Event Date: March 28, 2024
Does pineapple belong on pizza? Is a hotdog a sandwich? Come debate with us at this virtual Camp Promise hangout!
Event Date: April 6, 2024

Duchenne News

March 13, 2024
Following the FDA approval on October 26, 2023, AGAMREE is now available by prescription and dispensed throughout the United States through a specialty pharmacy network.
March 13, 2024
PepGen shares a press release announcing the FDA has granted both orphan drug and rare pediatric disease designations for PGN-EDO51.
March 5, 2024
REGENXBIO reports additional interim safety and efficacy data in the Phase I/II AFFINITY DUCHENNE® trial of RGX-202 in patients with Duchenne.

Recent Blog Posts

March 13, 2024
Ellis Bautista and his family celebrate the arrival of safe and accessible transportation.
March 7, 2024
Individuals from the Duchenne and rare disease community shared on obtaining their license, experiencing great thrills, starting careers, and more.
March 7, 2024
From the best BBQ bites to yard games and live music, Sigma fraternity members created an exciting event to assist the Duchenne community.

Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open