The Jett Foundation Fighting Duchenne Muscular Dystrophy

FDA Approval of eteplirsen, September 19, 2016. This is the first therapy for the treatment of Duchenne granted Accelerated Approval by the FDA.   Click here to learn more.

Thanks to everyone who made our Cooking for a Cause event a huge hit! Your support helps us further research efforts, educate and advocate for our community, and run programs for boys with Duchenne. To donate today, click here.

Save the date! Join us for our annual Golf Classic fundraiser in June, 2017. For more information, click here.

Looking for a team to join or a race to put your New Year’s resolution into action? Join one of our triathlon teams and get ready for 2016! For more information about joining our Tri for Jett or Gals For Cal, click here.

Are you looking for an accessible summer camp option for your child? Camp Promise is our FREE overnight camp for people of all ages with muscular dystrophy and select neuromuscular diseases. For more information, click here.

Save the Date for Jett Foundation’s Fist Annual “Shine a Light on Duchenne” Gala.  Thursday January 26, 2017 To Learn More

Our Mission

The mission of the Jett Foundation is to increase worldwide awareness of Duchenne muscular dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for this fatal disease and programming that will ensure children with Duchenne have the opportunity to enjoy a full life.

 

 

 

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Jett Foundation
Jett FoundationFriday, February 24th, 2017 at 6:36am
JETT GIVING FUND UPDATE
Joe and Austin are almost at 70% of their goal! Once they reach their goal of $20,000, the Jett Giving Fund will match that $20,000 and purchase them a much needed mobility van. The Jett Giving Fund provides financial assistance to Duchenne families who are in need of vital equipment that is often not covered by insurance. See Joe and Austin's story here....http://www.firstgiving.com/fundraiser/joe-wilcher/02. To find out more about the Jett Giving Fund and to make donations or learn about sponsorships and partnerships go to http://jettfoundation.org/givingfund/
Jett Foundation
Jett FoundationThursday, February 23rd, 2017 at 7:04am
The Jett Foundation will be hosting a JettRide open house at our offices in Kingston, MA on Thursday, March 2 from 6-8pm. JettRide is a cycle tour for teens across 5 states and who will visit over 20 families affected by Duchenne. The goal of the JettRide is to raise funds and awareness for Duchenne muscular dystrophy.

Some of the highlights include: White water rafting, Cedar Point Roller Coaster Park, Liberty Bell, Gettysburg and many more exciting days as we spread the gift of hope. Each rider is expected to fundraise and will receive a free bike upon hitting their fundraising goal.

To learn more, please visit Jettride.com, visit us in person at 68 Evergreen Street, Kingston MA, or call 781-585-5566.

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Upcoming Events

Save the Dates – Educational Roundtables; Feb 11th in Long Island and March 4th in New Orleans

All are welcome to attend Jett Foundation’s FREE roundtables that bring resources and information on treatment options and clinical trials directly to families affected by Duchenne. Jett’s next two roundtables are on Feb. 11th in Long Island, NY and on March 4th in New Orleans, LA. Check out our website for more dates and locations!    

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Shine a Light on Duchenne Gala – Thank you!

February 2, 2017

  This sold-out event was filled with families, friends, advocates, industry partners, and corporate sponsors, and we could not be more grateful. Click here for photos of this special evening. Our honorees of the evening, Cindy Quitzau, Bill Brett and The Flatley Foundation were acknowledged for their ability to inspire those around them, their hearts of gold, and their […]

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