The Jett Foundation Fighting Duchenne Muscular Dystrophy

FDA Advisory Committee Meeting, April 25th. We made Duchenne history by changing forever the way patient input is considered by the FDA and the drug development world. The world is watching to see the FDA decision on May 26th.  Click here to learn more. #MakeDuchenneHistory

Thanks to everyone who made our Cooking for a Cause event a huge hit! Your support helps us further research efforts, educate and advocate for our community, and run programs for boys with Duchenne. To donate today, click here.

Save the date! Join us for our annual Golf Classic fundraiser on Wednesday, June 1, 2016. For more information, click here.

Looking for a team to join or a race to put your New Year’s resolution into action? Join one of our triathlon teams and get ready for 2016! For more information about joining our Tri for Jett or Gals For Cal, click here.

Are you looking for an accessible summer camp option for your child? Camp Promise is our FREE overnight camp for people of all ages with muscular dystrophy and select neuromuscular diseases. For more information, click here.

Our Mission

The mission of the Jett Foundation is to increase worldwide awareness of Duchenne muscular dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for this fatal disease and programming that will ensure children with Duchenne have the opportunity to enjoy a full life.

 

 

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The Jett Foundation
The Jett Foundation added 2 new photos.Thursday, July 28th, 2016 at 5:22am
JettRide finish line celebration will be this Saturday at 3:00 - in Sutton, Massachusetts at the Sutton Town Beach/Marions Camp which is located at the end of Tuttle Road, Sutton. Use a gps address of 5 Tuttle Rd and follow it to the very end. Looking forward to their Finish line celebration! Light refreshments will be served. We are so incredibly proud of Jack, Emily and Ashley - please help welcome them home! #jettfoundation #jettriders #makeduchennehistory
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The Jett Foundation
The Jett FoundationThursday, July 28th, 2016 at 1:04am
@Laura Kawagoe and @Kassidee Toguchi say "Aloha" from Times Square, New York City! They dedicate the pic in front of the #jettfoundation billboard to @Sevastyan Apa. Thank you for spreading awareness of #duchenne. Have your friends like our page and your pic for your chance to win a L.L.Bean jacket.
#JettFoundationGO! #hourglass #duchennecommunity
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Tuesday, July 26th, 2016 at 11:28pm
Keep it going! @fundDuchenne @NY1 @ABC7NY @NBCNewYork @CBSNewYork @fox5ny @NECN @WCVB @Chronicle5 @cbsboston @7News https://t.co/djsGqTmILH

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Upcoming Events

Adaptive sailing camp

Are you still looking for an adaptive summer camp option in the Boston area? Join us for a FREE week-long adaptive sailing camp on the Boston Harbor! All ages and all abilities welcome. 

Blog

WSJ – Boys Not Statistics

July 8, 2016

Boys, Not Statistics A drug for muscular dystrophy works better than we reported. Jack Willis, center, Nolan Willis, right, and Max LeClaire, bottom, attended the opening for Sarepta Therapeutics global headquarters in Cambridge on June 2, 2014. Jack Willis, center, Nolan Willis, right, and Max LeClaire, bottom, attended the opening for Sarepta Therapeutics global headquarters […]

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