Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

Family

Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.

Donate

Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.

Volunteer

Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

Featured Programs

Jett Giving Fund

Jett Giving Fund offers families assistance through two main branches of support: the Accessible Vehicle Fund helps families obtain safe, accessible transportation; the Emergency Fund provides grants to families facing unexpected, emergency situations.

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

Upcoming Events

Event Date: January 9, 2025
An opportunity to engage with others through sessions on expressive art therapy, sound therapy, hope & gratitude, and more.
Event Date: January 9, 2025
Before we get too far into the New Year, let’s take a quick glance at Y2K itself. From the toys we played with to MTV’s top hits and more, hop on Zoom with us to test your 2000’s knowledge.
Event Date: January 13, 2025
Jett Foundation’s monthly virtual support group for moms and caregivers of individuals living with Duchenne muscular dystrophy.

Duchenne News

December 18, 2024
Percheron Therapeutics announces topline six-month results from the Company’s ongoing international phase IIb randomised.
December 16, 2024
Edgewise announces positive topline results from the Phase 2 CANYON trial of sevasemten in individuals with Becker muscular dystrophy.
November 19, 2024
Updates on RGX-202, REGENXBIO’s investigational gene therapy for the treatment of Duchenne muscular dystrophy.

Recent Blog Posts

December 3, 2024
Cory and his family have smiles ear to ear thanks to uninterrupted travel in their accessible van.
November 27, 2024
Thanks to your support, dreams become reality through our trusted direct service programming available to the Duchenne community.

Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open