Welcome Packet
Been diagnosed or want to learn more?
Request a Packet
About Duchenne
Facts, Treatment, and Care
Read More
Duchenne News
The latest from our partners.
Read Now
Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
Learn More
Resources for Carriers
Tools and materials for female carriers.
Read More
Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
Find Resources
Transition Resources
GotTransition resources and tools.
Learn More
Camp Promise
Locations and information on how to apply.
Learn More
Community Webinars
Watch past recordings on care and resource topics.
Watch Now
Saturday, September 7, 2024
For the past eight years, Jett Foundation has hosted this annual event of celebration and remembrance of our Duchenne community. We look forward to our 9th annual WDAD on September 7, 2024, when we will connect with our community throughout the day.
In honor of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring individuals and families, Duchenne experts, and industry partners together to recognize different aspects of Duchenne life, acknowledge the challenges still to come, and show that we are Stronger than Duchenne.Â
In the past, we’ve hosted in-person events in the Boston area or virtual events. This year, we’re excited to do both! This will allow us to spread awareness about Duchenne further across the country and even internationally.
This year’s World Duchenne Awareness Day shirts feature a spin on Jett’s classic “Stronger than Duchenne” tee and a quote from disability rights activist, Judy Heumann. The quote reads “disability only becomes a tragedy when society fails to provide the things we need to lead our lives.”
8:00AM ET
Tune in for a special message from our Executive Director, Eric Snyder.
11:00AM-2:00PM ET
Marriott Boston Quincy, 1000 Marriott Dr, Quincy, MA 02169
Family-friendly luncheon with keynote speaker and fun family activities!
5:00PM ET | Via Zoom
Join us for a panel discussion featuring members of our community surrounding this year's theme: Raise Your Voice for Duchenne.
Change your Facebook profile photo in honor of WDAD! Use our Canva template to customize the frame with your personal photo and the name of someone you are stronger than Duchenne for.
Â
How to use the template from a desktop:
Â
How to use the template from a phone:
Ideas to Get Your Local Community Involved
We encourage our event sponsors to download the graphics below to join the digital conversation leading up to and on World Duchenne Awareness Day!Â
Use our generic graphic or select the graphic with space to the right of the Jett logo to add your own company’s branding.
Download Sponsor Co-branded 1080x1080px Graphic >>
To learn more about WDAD sponsorship opportunities, please email [email protected]Â or view our Sponsorship Packet.
Thank you to our Advocacy Sponsors:
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
Sign up to receive our newsletter and updates.
Required fields are denoted with an asterisk (*)Â
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.