Welcome Packet
Been diagnosed or want to learn more?
Request a Packet
About Duchenne
Facts, Treatment, and Care
Read More
Duchenne News
The latest from our partners.
Read Now
Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
Learn More
Resources for Carriers
Tools and materials for female carriers.
Read More
Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
Find Resources
Transition Resources
GotTransition resources and tools.
Learn More
Camp Promise
Locations and information on how to apply.
Learn More
Community Webinars
Watch past recordings on care and resource topics.
Watch Now
September 7, 2024
For the past eight years, Jett Foundation has hosted this annual event of celebration and remembrance of our Duchenne community. Stay tuned for details on our 9th annual WDAD on September 7, 2024, when we will connect with our community throughout the day.
In honor of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring individuals and families, Duchenne experts, and industry partners together to recognize different aspects of Duchenne life, acknowledge the challenges still to come, and show that we are Stronger than Duchenne.Â
In 2023, members of our community shared how they are breaking barriers in life, their career, relationships, and more.
Welcome to WDAD with Jett Foundation Tune in on social media for a video welcome message from Jett’s Executive Director, Eric Snyder, to kick off the day. |
WDAD Breaking Barriers Panel Discussion The Two Disabled Dudes moderate a panel discussion on the ways our community is breaking barriers in access to care and as we identify areas that still need improvement. |
Adaptive Demonstrations During these virtual demonstrations, we will be joined by community members who will share adaptive tools, resources for self-care, and tips for independent living. Choose from two demonstrations that will be happening simultaneously: cooking at home or adaptations for independent living. Download the recipe we will be following and check out our Amazon List of Accessible Kitchen Essentials ahead of time. |
Luminaria Closing Ceremony |
Ideas to Get Your Local Community Involved
Jett Foundation’s Awareness Boxes are an exciting way to connect with our community across the globe on World Duchenne Awareness Day. In your box you will find tools for spreading awareness about Duchenne, Jett Foundation spirit items, tools for participating with us on September 7, and more!
The deadline to order a box was August 14, 2023.
Â
Â
If you would like to purchase WDADÂ shirts separately from the four (4) that are included in the Individual/Family Awareness Day Boxes, or you are not an individual/family member, please visit the link below.
This year’s shirts bring the global WDAD theme of “Breaking Barriers in Duchenne” to life with our traditional Stronger Than Duchnne slogan breaking through a wall of bricks. The back features the names of individuals living with Duchenne in our community forming the number 79, representing the 79 exons that make up the dystrophin gene. Secure yours today to join us in recognizing this worldwide day dedicated to Duchenne.
The deadline to order additional shirts was August 14, 2023.
Jett Foundation’s World Duchenne Awareness Day events are made possible by the generous support of our sponsors. Instructions for submitting a sponsorship form can be found on the last page of the Sponsorship Kit. For questions regarding sponsorship of our World Duchenne Awareness Day events, please reach out to maura@jettfoundation.org.
Change your Facebook profile photo in honor of WDAD! Use our Canva template to customize the frame with your personal photo.
Â
How to use the template from a desktop:
Â
How to use the template from a phone:
To learn more about WDAD and awareness day sponsorship opportunities, please email maura@jettfoundation.org.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | info@jettfoundation.org
Sign up to receive our newsletter and updates.
Required fields are denoted with an asterisk (*)Â
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.