Family Support Groups

Jett Foundation continues to promote and assist family support groups to help build stronger support systems, relationships, education, and connections across the Duchenne community. Visit one of our Family Support Group events to obtain resources and learn more from others in the Duchenne community!

Porch Nite

Porch Nite was founded in 2018 by two Jett Foundation Community Ambassadors and moms of children affected by Duchenne to bring love, support, and laughter to mothers affected by Duchenne across the United States.

Upcoming Porch Nite Dates

January 8 (virtual): Open Conversations

January 22 (virtual): Open Conversations

February 5 (virtual): Open Conversations

February 19 (virtual): Open Conversations

March 4 (virtual): Open Conversations

April 15 (virtual): Open Conversations

April 29 (virtual): Open Conversations >>

May 17-19 (in-person): San Marcos, TX >>

June 3 (virtual): Open Conversations >>

September 9 (virtual): Open Conversations >>

September 23 (virtual): Open Conversations >>

October 7 (virtual): Open Conversations >>

November 4 (virtual): Open Conversations >>

November 18 (virtual): Open Conversations >>

December 9 (virtual): Open Conversations >>

Carrier Conversations

Carrier Conversations is Jett Foundation’s monthly virtual support group for women in the Duchenne community who are carriers of Duchenne muscular dystrophy (whether they are manifesting or not).

This group is a safe space for carriers to connect and chat with each other. It is an informal, intimate setting that ensures women feel comfortable and empowered in organic conversations that arise, which may include but are not limited to: care, being a caregiver, self-care, medical issues, guilt, and more.

Upcoming Carrier Conversations Dates

January 4 (virtual): Carrier Conversations

February 3 (virtual): Carrier Conversations

March 14 (virtual): Carrier Conversations

April 20 (virtual): Carrier Conversations

May 9 (virtual): Carrier Conversations >>

June 8 (virtual): Carrier Conversations >>

Upcoming Caregiver Connextion Dates

April 12 (virtual): Caregiver Connextion

May 10 (virtual): Caregiver Connextion >>

Caregiver Connextion

Caregiver Connextion is Jett Foundation’s monthly virtual support group for parents, family members or caregivers of females who have been diagnosed with Duchenne or are symptomatic carriers.

This group is a safe space for caregivers (moms, dads, aunts, uncles, grandparents, guardians, etc.) to connect and chat with each other about caring for their daughters, granddaughters, and female loved ones impacted by Duchenne. It is an informal, intimate setting that ensures caregivers feel comfortable and empowered in organic conversations that arise, which may include but are not limited to: care, being a caregiver, self-care, supporting siblings, guilt, and more.

Book of Knowledge

During our Book of Knowledge Porch Nite session, parents can expect to compile important information regarding your child’s medical condition and contact information in one safe space – your Book of Knowledge – for reference in case of an emergency.

Request a template below to receive this great tool for families who have children with special health care needs. Using this Book of Knowledge will help keep track of any important information involved in you or your child’s healthcare journey.

View a Past Book of Knowledge Session Recording