The Jett Foundation Fighting Duchenne Muscular Dystrophy

Videos

Published September 19, 2016
Approval for Duchenne muscular dystrophy drug gives families hope

http://http://www.fox25boston.com/news/approval-for-duchenne-muscular-dystrophy-drug-giving-family-hope/447666826

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Published on September 20, 2016

First muscular dystrophy drug Ok’ed by FDA
http://www.necn.com/on-air/as-seen-on/NECN_092016_Connolly_MS_Drug_5PM_NECN-394191051.html

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Published on Apr 29, 2016
“We will stand by the agency if eteplirsen proves to not be effective”

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Local Mothers Push for Breakthrough Drug
May 27, 2014

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Christine McSherry, founder of the Jett Foundation talks about her son’s experience as a non-ambulatory Duchenne muscular dystrophy patient taking Sarepta’s eteplirsen.
Published on Jan 18, 2016

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Local mother in DC fighting for approval for Duchenne drug
by: Heather Hegedus Updated: Apr 26, 2016 – 7:21 PM
http://www.fox25boston.com/news/local-mother-in-dc-fighting-for-approval-of-duchenne-drug/243696016

 

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