The Jett Foundation Fighting Duchenne Muscular Dystrophy

Rare Disease Day 2017

Screen Shot 2017-03-07 at 6.21.55 PMJett Foundation invites families affected by rare disease, industry and academic partners to celebrate Rare Disease Day 2017 at the 2nd Annual Rare Disease Day Luncheon at the Royal Sonesta, Cambridge, MA.

Every rare disease community faces challenges unique to their disorder.This is an open discussion over lunch about expediting and improving drug development in rare disease.
We welcome our guest speaker, FDA’s Richard Moscicki, M.D., Deputy Center Director for Science Operations at CDER.

The Duchenne and rare disease communities unite on World Duchenne Awareness Day (September 7th) and Rare Disease Day (February 28th) as a collective voice to enhance disease awareness among policy makers and the public, and stress the importance of unity. The Jett Foundation is committed to organizing annual events to celebrate in Cambridge as an opportunity to spread awareness and engage our local community.

For more information, please email info@jettfoundation.org.

 

 

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