The Jett Foundation Fighting Duchenne Muscular Dystrophy

Media

The Jett Foundation Media

View more videos click  >> > More Videos

Published on Apr 29, 2016
“We will stand by the agency if eteplirsen proves to not be effective”

View more Social Feeds click  >> > Social Media Feeds

Facebook Feed

Jett Foundation
Jett FoundationFriday, February 24th, 2017 at 6:36am
JETT GIVING FUND UPDATE
Joe and Austin are almost at 70% of their goal! Once they reach their goal of $20,000, the Jett Giving Fund will match that $20,000 and purchase them a much needed mobility van. The Jett Giving Fund provides financial assistance to Duchenne families who are in need of vital equipment that is often not covered by insurance. See Joe and Austin's story here....http://www.firstgiving.com/fundraiser/joe-wilcher/02. To find out more about the Jett Giving Fund and to make donations or learn about sponsorships and partnerships go to http://jettfoundation.org/givingfund/
Jett Foundation
Jett FoundationThursday, February 23rd, 2017 at 7:04am
The Jett Foundation will be hosting a JettRide open house at our offices in Kingston, MA on Thursday, March 2 from 6-8pm. JettRide is a cycle tour for teens across 5 states and who will visit over 20 families affected by Duchenne. The goal of the JettRide is to raise funds and awareness for Duchenne muscular dystrophy.

Some of the highlights include: White water rafting, Cedar Point Roller Coaster Park, Liberty Bell, Gettysburg and many more exciting days as we spread the gift of hope. Each rider is expected to fundraise and will receive a free bike upon hitting their fundraising goal.

To learn more, please visit Jettride.com, visit us in person at 68 Evergreen Street, Kingston MA, or call 781-585-5566.
Jett Foundation
Jett FoundationSaturday, February 18th, 2017 at 3:31am
Jett Foundation Requests Marathon Convene a Meeting of Stakeholders to Discuss Re-evaluation of Deflazacort Pricing

http://jettfoundation.org/blog/jett-foundations-requests-marathon-pharmaceuticals-convene-a-meeting-of-stakeholders/
Jett Foundation
Jett FoundationWednesday, February 15th, 2017 at 6:56am
Happy Valentines Day from the Jett Giving Fund....
We would LOVE for all kids with Duchenne to be able to have access to safe transportation to see their friends, go to school, get to appointments, and have a better quality of life.
http://jettfoundation.org/givingfund/
Jett Foundation
Jett Foundation shared Tri4Jett's photo.Wednesday, February 15th, 2017 at 6:48am

Twitter Feed

Show Buttons
Hide Buttons