In our quest to find an acceptable treatment for our son and other boys with Duchenne muscular dystrophy, we work tirelessly to find clean, safe compounds that maintain the health and well being of those who suffer from disease or disorders like DMD.
For more information on MyoJett, please read our Info Sheet.
Due to the lack of an acceptable cure or treatment other than corticosteroids, many parents with boys diagnosed with DMD have turned to supplements. Anything we can do to help prolong the life and add to the quality of life for our boys has become our major focus. In late 2008, my son’s physician – astonished by the number of supplements my son was consuming, gave me a book to read; Natural Causes by Dan Hurley. This riveting work of investigative journalism charted the supplement craze and revealed the dangerous – sometimes deadly – side of these completely unregulated products. Realizing that my son and others who were using supplements to prolong our sons’ lives – we, parents, were all in danger of actually hurting our children. The supplements that we were giving could be tainted with harmful substances. Worse yet, until recently, we had absolutely no proof that we were doing any good by giving these compounds in combination with each other.
Now, scientists are beginning to collect some data on the effect of specific compounds to duchenne muscle fibers through a testing platform, Compound Quest (link to CQ document)using the Myomics. There are several other industry examples also using supplements to test their effectiveness on duchenne, anti-inflammatory compounds, NSAIDS, green tea extract and many more. The development into this area has lead to a need ensuring safe supplements for the DMD population. None of these supplements or compounds have been proven in a human model to cure or treat DMD, as parents, we are simply using our natural instincts and reasoning to keep our boys as healthy as possible. However, that being said, almost all of drug therapies have started out as a supplement – combination of natural compounds that eventually take the form of a “drug”.
Lastly, as someone who has a vested interest in the science of DMD and pushing it forward to find the treatment and ultimately the cure – I was bothered by the enormous amount of money being spent by us as parents – and the struggle for funding to further research; hence MyoJett’s policy – all proceeds from MyoJett will be used to benefit research in neuromuscular disorders.