Links and Resources

Jett Foundation is pleased to recommend these companies that provide vehicles, mobility equipment, and recreational products and services for the Duchenne muscular dystrophy community:

  • Ride Away: Ride Away (with 11 East Coast locations) is America’s largest provider of accessible vehicles and vehicle modifications including hand controls, wheelchair and scooter lifts, ramps, raised doors, lowered floors and specialized gas, brake and steering controls. Ride Away provides quality vehicles and superior customer service.
  • Liko: Liko provides patient lifts, from compact, lightweight, mobile lifts to high-capacity overhead systems. As a nurse, Christine McSherry, executive director of the Jett Foundation, has worked with many lift devices and finds that Liko lifts are safe and comfortable. Liko also offers a wide assortment of slings, repositioning sheets and other lifting accessories.
  • Totally Mobile: Totally Mobile, based out of East Sandwich, MA, provides a full line of mobility and accessibility products, such as wheelchairs, scooters, ramps, and stairlifts, to customers throughout New England. Christine McSherry says its one of the best companies that she has worked with.
  • Bretton Woods Adaptive Program: This program provides persons with disabilities an opportunity to enjoy the challenges and rewards of sports and recreation with their family and friends. Hiking, biking, and nature walk programs are offered in the summer, and skiing, snowboarding, and snowshoeing programs are offered in the winter. Visit the Adaptive section of the Mount Washington Resort website or call Sandy at 603-278-3398 for more information. Mount Washington Resort also offers offer handicapped accommodations.
  • Freedom Concepts: A child with DMD can enjoy and freedom of riding a bike with a custom-built bicycles by Freedom Concepts. Visit www.Freedomconcepts.com to see their mobility products designed for all ages.
  • Wheelchair Recycler: David Heim collects and reuses parts from old, donated, discarded, or broken wheelchairs to build power wheelchairs. Heim’s refurbished wheelchairs are made available at affordable prices to people who have low incomes or who don’t have insurance that will cover the high costs of power wheelchairs.

There are so many resources available to help educate you on your path to learn more information about DMD. We have gathered some of them together here – along with listing links to information within this website. We hope you will take the time to explore these. If there are other links that you would like to share, please email us.

Individual Education Programs (IEPs)

Mobility

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Education

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Advocacy

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Medical/Research

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Emotional

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MD Community

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International Organizations

More:

Disney California

Lotsa helping hands, great way to coordinate “help” for your family or someone who needs it…also looks like it could be utilized to help organize volunteers for grassroot fundraisers

A bed that some patients with NMD are using available here.

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