Duchenne Organizations
DMD Organizations Contact Information:
Jett Foundation – jettfoundation.org
Kingston, MA
Phone- 781-585-5566
Christine McSherry – President
info@jettfoundation.org
MDA – www.mdausa.org
National Headquarters -Tucson, AZ
Phone: 1-800-572-1717
You can also find local contacts on their website using the zip code locator tool.
PPMD - parentprojectmd.org
Hackensack, NJ
Phone – (201)-944-9985
Toll Free – 1-800-714-5437
Fax – (201)-944-9987
Pat Furlong – Founding President and CEO
Kimberly Galberaith – Executive vice President
Email: Kimberly@parentprojectmd.org
Ryan Fischer – Director of Community Outreach and Advocacy
Email: ryan@parentprojectmd.org
Will Nolan – Director of Communications and Administration
Email: will@parentprjectmd.org
Charley’s Fund - charleysfund.com
Stockbridge, MA
Phone – 413-298-4300
Toll Free – 1-877-436-3363 or 1-877-4-END-DMD
Tracy and Benjamin Seckler – Charley’s Mom and Dad
Amy Jaeger – Office Manager – amy@charleysfund.org
Tel – (413)-528-5744
Cure Duchenne - cureduchenne.org
Corona Del Mar, CA
Phone – 949-872-2568
Email – debra@cureduchenne.org
Debra Miller – President
Team Joseph – http://www.wix.com/danted/josephpenrod-com2
Detroit, Michigan
Marissa Penrod
The Foundation to Eradicate Duchenne – duchennemd.org
Alexandria, VA
Phone – (703) 683-7500
Fax – (703)-683-4482
Joel Wood – President – jwood@duchennemd.org
Dana Wood – Vice President/Assistant treasurer – dwood@duchennemd.org
Liam’s LEEP - http://www.wix.com/kdm114/liams-leep
Norwood, MA
The McGourty Family
Hope for Gus – hopeforgus.com
Steve and Tonya Dreher
Francestown, NH
hopeforgus@yahoo.com
Suneel’s Light – suneelslight.org
Williamsville, NY
Phone – (716)-880-5590
Email – suneelslight@gmail.com
David Korzak – President
Kenneth A. Manning – Vice President
Ryan’s Quest – ryansquest.org
Hamilton, NJ
Phone – (609)-947-3611
Email – info@ryansquest.org
Maria and David Schultz – Founders
Gals for Cal -galsforcal.com
Boston, MA
Cindy Quitzau
Romito Foundation – romitofoundation.org
Firestone, CO
Richard Romito -President
Phone – (303) – 718-2538
Email – richard.romito@romitofoundation.org
Jo Vroman – Vice President
Phone – (303)-717-3104
Email – jo.vroman@romitofoundation.org
Ryan’s Hope – hopeforryan.com
Plainville, MA
Phone – (508)-699-3888
Email – info@hopeforryan.com
Scott and Linda Hastings – Founders
Foundation for their SAKE – http://jagerguy.typepad.com/the_fight/
Brian Levin -Perky Jerky perkyjerky.com
Denver, CO
Hope for Javier – hopeforjavier.org
East Setauket, NY
Rich Romero and Jen Portnoy
Email – Jen@hopeforjavier.org
Cure Dale’s Duchenne - curedalesduchenne.com
Gainesville, FL
The Gainesville Community Foundation
Phone – (352)-367-0060
Fax – (352)-378-1718
Rick and Lelia Ginder
Email – ginders@curedalesduchenne.com
Nash Avery Foundation – nashaveryfoundation.org
Minneapolis, MN
Email – nasharmy@nashaveryfoundation.org
Tom and Angie Wicka
Zack Heger Foundation – zackhegerfoundation.org
Norwell, MA
Margie – (617)-529-9612
Rodney – (781)-204-9002
DMDfund.org
Encino, CA
Phone – (818)-692-5500
Kyle Kyllan – President
Email – kyle@dmdfund.org
JBS Keys to DMD – jbskeys.org
Norwood, MA
Phone – (781)-269-1175
Email – jb@jbskeys.org
Beth and Jeff Harvey – Founders
Race MD – racemd.org
Portland, OR
Phone – (503)-278-3273
Fax – (503)-228-5381
Email – info@racemd.com
Beat Duchenne – Keelan’s crew
Jesse’s Journey – jessesjourney.com
London, ON Canada
Phone – (519)-645-8855
Fax – (519)-645-2242
Rick Moss – Managing Director
Tel. ext. 224
Email – rickmoss@jessesjourney.com
Lisa Wohlers – Admin Assistant
Tel. ext. – 221
Email – lisaw@jessesjourney.com
John Davidson – Founder
Tel. ext. – 222
Email – johndavidson@jessesjourney.com
Action Duchenne – actionduchenne.org
London, United Kingdom
Phone – 020 8556 9955
Nick Catlin – CEO
Mobile – 07920 723 490
Email – nick@actionduchenne.org
Save our Boy Foundation - saveourboy.org
The Woodlands, TX
Heinrich Meermann
Phone – (713)-392-6001
Heather Meermann
Phone – (713)-494-1102
Email – mailbox@saveourboy.org
Duchenne San Diego - duchennesandiego.org
San Diego, CA
Phone – 1-858-775-7057
Email – info@duchennesandiego.org
Helena Jayasuriya – Executive Director
Two Smiles one HOPE - twosmilesonehope.com
Fayetteville, NY
Phone – (315)-415-4414
Fax – (315)-637-8234
Matthew and Alison Willis – Founders
Darius Goes West – dariusgoeswest.org
Athens, GA
Phone – (706)-613-7237
Email – dariusgoeswest@gmail.com
Hope for Gabe – hopeforgabe.org
caringbridge.org/visit/gabegriffin
Scott and Traci Griffin – Birmingham Alabama
Angels Muscles – angelsmuscles.org
Avalon, NJ
Email – chrbaro@aol.com
Melissa Barone
Cooper’s Cure - cooperscure.org
Hermosa Beach, CA
Cathy and Scott Jones
MDFF – mdff.org
South Indianapolis, Indianna
Phone – (317)-923-MDFF
Toll Free – (800) 544-1213
Fax – (317)-923-6334
Misko Foundation - misko.hu
or facebook – http://www.facebook.com/MiskoFoundation
Hungary
Email – info@misko.hu
Teens for Duchenne – teensforduchenne.com – coming soon!
Newport Beach, CA
Duchenne Heroes – duchenneheroes.nl
Amsterdam
Phone – 088 366 54 60
Email – info@duchenneheroes.nl
Dylan’s Footprint – dylansfootprint.org
Long Island, NY
Phone – (631)-754-5360
Email – info@dylanfootprint.org
Coalition Duchenne - coalitionduchenne.org – under construction
CoalitionDuchenne.org
Cath Jayasuriya, Founder and President
catherine@coalitionduchenne.org
Newport Beach
mdactkids.org
Newark, NJ
973-757-6000
James Lacerenza
