Resources
When a family receives the initial diagnosis of Duchenne muscular Dystrophy, it is devastating, even life shattering. With the help the help of physician referrals, web searchers and word of mouth, many families do come to find hope and guidance. The Jett Foundation is dedicated to helping families affected by Duchenne by providing the best, latest research and information, funding the Jett Program for Pediatric Neuromuscular Disorders at Mass General Hospital for Children and bringing the Duchenne community together.
This section, a work in progress, provides information on current research, treatments, activities and links to external resources.