Thank you to everyone who made the 9th annual Jett Golf Classic an unbelievable success. Although it rained in the morning, and at night, from the first tee to the final hole, we had great weather for the JGC!  By 1pm, the clouds had parted and the sun came out.

It was truly an incredible day. Included morning thunderstorms, evening thunderstorms, and several sunny hours of golf with friends and family. Of course it also included:

We’re only 2 days away from the 8th Annual Jett Golf Classic at Pinehills in Plymouth, MA! Below, I’ve included more information about the event, including start times, silent auction items and more. Two days until we hit the links. See you there!

Sincerely,
Christine McSherry
Jett Foundation

Event Info:
What: The Jett Golf Classic
Where: Pinehills Golf Club, Plymouth, MA.
Route 3 South to Exit #3. Follow Signs.
When:Wednesday, June 2nd, 2010.
Registration time: 10:00 am
Shotgun Start: 11:30 am

Live Auction Preview

The live auction will take place at 6:15 pm on June 2nd. Read on for more information about auction and raffle items. Cocktail hour starts at 4:30 pm.

Raffle Items Include:

• Diamond Necklace – Our raffle sponsor Stephen Leigh Jewelers donated a beautiful diamond necklace.
• 42″ Samsung Flat Screen TV- Donated by “Friends of Jett”
• Sony Reader – Donated by “Friends of Jett”

Live Auction Items Include:

• Vermont House for Leaf peeking season, 8 bedroom, 5 baths – just outside Sugarbush!
• Sunset Sail for 5 aboard a 27 foot sailboat – leaves out of Hull Harbor
• Two nights at the newly renovated beautiful Sagamore Resort, includes golf
• Vacation in Falmouth this summer, one week stay in a beautiful cape home…
• 7 Nights at any RCI resort in the WORLD
• 4 Private Box Tickets at the Wang to see Natalie Merchant, transportation and certificate for Boston’s acclaimed French restaurant, Mistral
• October, 2010 Red Sox vs Yankee Tix, includes a visit to the Box with Joe Castiglione
• Ski and Stay at Loon Mountain, including dinner and lift passes
• Cereal for a year from Kellogg’s cereal.
• And many more.

2010-04-16 Final Summary of Ataluren Data at AAN

Celebrate spring by getting the latest information on:

Our April 9th Wine Tasting Event: @ the Wine Connextion in Andover.
MyoJett Nutraceuticals: A new line of vitamins and supplements for individuals with Duchenne.
and Our Brand New Website!

THE 2010 RIDE
The JettRide is a fully supported bike-a-thon – with food and water stops, mechanical and medical assistance, luggage transportation and lodging – that will travel through 13 states, stop at over 30 cities/towns and log over 3,700 miles in 9 weeks. Cyclists are required to raise $4,000 to participate in the event. The ride will be limited to 30 participants and will be organized by a professional cycling organization called BIKEternity that offers a life changing experience to teens as well as the DMD community.

The 2010 RIDERS
The Jett Ride features inspiring young adults aged 13-20 who are riding for a cure to Duchenne muscular dystrophy. Riders can join for periods from one day along the route to the entire length of the ride. Email colleen@jettfoundation.org to learn more.

Nick Larkin with his mom Lauren Ferrari and Assistant Principal Connie Varoudakis

Nick Larkin is an 18 year old High School student from Danvers, MA. He is a typical high school senior; he has tons of friends and looks forward to graduating with them this June. The only difference between Nick and his friends, however, is that Nick has a form of muscular dystrophy: Duchenne (DMD). DMD is the most common fatal genetic disorder diagnosed during childhood today. It is a progressive neuromuscular disorder that affects mostly boys, and causes the loss of muscle function and independence. At 18 years old, Nick is wheelchair bound. Despite his disorder, Nick maintains a positive attitude and is an inspiration to all who know him.

Nick was recently nominated as a channel five A+ student by Danvers High School’s assistant Principal Connie Varoudakis. This channel 5 segment profiles high school students who, despite adverse circumstances have excelled academically. Channel 5 news recently came to Nick’s high school and followed him around to see what a typical day at school is like for this brave 18 year old. You can watch his segment on thebostonchannel.com website here: http://tinyurl.com/ya5w5yv

Nick is featured in our Documentary “10th Gear JettRide: 3800 Miles to a Cure”. In the documentary, we hear first hand from Nick how he feels about his disorder, and the daily struggles he and his family face. He explains the first time he realized the extent of his disorder, and how he has since learned to accept it and continue living with a positive attitude. This film, although heartbreaking at times, is truly inspirational, and has touched all who have seen it. The Jett Foundation will be hosting a showing of this inspiring film at Danvers High School on March 10, 2010, at 9:15am for Nick and his entire senior class.

watch the trailer here: http://tinyurl.com/yeg2c8x

Christine at the Joey Fund/Cystic Fibrosis Foundation Party

The Joey Fund

While attending the Joey Fund/CFF fundraiser, Jett Foundation founder Christine McSherry took a moment to pose for a picture.  Little did she know that she would turn up a week later in the Boston Globe!  Congratulations to the Joey Fund and the Cystic Fibrosis Foundation for a wonderful event!