July 25, 2012
The JettRiders were featured on Cleveland.com!
July 27, 2011
The Gals for Cal were featured this week in the Worcester Telegram. Click on the image below for the full article.
June 3, 2011
Thank you to everyone who made the 9th annual Jett Golf Classic an unbelievable success. Although it rained in the morning, and at night, from the first tee to the final hole, we had great weather for the JGC! By 1pm, the clouds had parted and the sun came out.
It was truly an incredible day. Included morning thunderstorms, evening thunderstorms, and several sunny hours of golf with friends and family. Of course it also included:
May 28, 2010
We’re only 2 days away from the 8th Annual Jett Golf Classic at Pinehills in Plymouth, MA! Below, I’ve included more information about the event, including start times, silent auction items and more. Two days until we hit the links. See you there!
What: The Jett Golf Classic
Where: Pinehills Golf Club, Plymouth, MA.
Route 3 South to Exit #3. Follow Signs.
When:Wednesday, June 2nd, 2010.
Registration time: 10:00 am
Shotgun Start: 11:30 am
The live auction will take place at 6:15 pm on June 2nd. Read on for more information about auction and raffle items. Cocktail hour starts at 4:30 pm.
Raffle Items Include:
Live Auction Items Include:
April 21, 2010
PTC Therapeutics has released the findings from phase II of the ataluren trials. Read the pdf here:
April 5, 2010
Today, the Jett Foundation released its April Newsletter. Check out an html version here.
Celebrate spring by getting the latest information on:
Looking for a life-changing experience? Join our group of inspiring teens as they unite families affected by Duchenne in a 3,700 mile cross country ride for a cure. We currently need more riders, more families along the route (within 200 mi) to support the riders, churches, YMCA’s etc to host nights, meals, hot showers, day riders at locations across the country and pretty much anything you can think of. The 2010 JettRide is poised to be an incredible success, but we need your help to make it a reality. Please contact firstname.lastname@example.org to sign up or learn more.
THE 2010 RIDE
The JettRide is a fully supported bike-a-thon – with food and water stops, mechanical and medical assistance, luggage transportation and lodging – that will travel through 13 states, stop at over 30 cities/towns and log over 3,700 miles in 9 weeks. Cyclists are required to raise $4,000 to participate in the event. The ride will be limited to 30 participants and will be organized by a professional cycling organization called BIKEternity that offers a life changing experience to teens as well as the DMD community.
The 2010 RIDERS
The Jett Ride features inspiring young adults aged 13-20 who are riding for a cure to Duchenne muscular dystrophy. Riders can join for periods from one day along the route to the entire length of the ride. Email email@example.com to learn more.
March 12, 2010
This inspirational film won Best Feature Documentary at the Hollywood East Film Festival.
February 23, 2010
Nick Larkin is an 18 year old High School student from Danvers, MA. He is a typical high school senior; he has tons of friends and looks forward to graduating with them this June. The only difference between Nick and his friends, however, is that Nick has a form of muscular dystrophy: Duchenne (DMD). DMD is the most common fatal genetic disorder diagnosed during childhood today. It is a progressive neuromuscular disorder that affects mostly boys, and causes the loss of muscle function and independence. At 18 years old, Nick is wheelchair bound. Despite his disorder, Nick maintains a positive attitude and is an inspiration to all who know him.
Nick was recently nominated as a channel five A+ student by Danvers High School’s assistant Principal Connie Varoudakis. This channel 5 segment profiles high school students who, despite adverse circumstances have excelled academically. Channel 5 news recently came to Nick’s high school and followed him around to see what a typical day at school is like for this brave 18 year old. You can watch his segment on thebostonchannel.com website here: http://tinyurl.com/ya5w5yv
Nick is featured in our Documentary “10th Gear JettRide: 3800 Miles to a Cure”. In the documentary, we hear first hand from Nick how he feels about his disorder, and the daily struggles he and his family face. He explains the first time he realized the extent of his disorder, and how he has since learned to accept it and continue living with a positive attitude. This film, although heartbreaking at times, is truly inspirational, and has touched all who have seen it. The Jett Foundation will be hosting a showing of this inspiring film at Danvers High School on March 10, 2010, at 9:15am for Nick and his entire senior class.
watch the trailer here: http://tinyurl.com/yeg2c8x