The Jett Foundation Fighting Duchenne Muscular Dystrophy

Urgent Message About AdComm

January 20, 2016

Because of a major snow storm heading to the DC area, the eteplirsen Ad Comm has been postponed.  A new date has not yet been set.

If you have not left to come to DC yet, DON’T COME.  If you arranged travel through us and haven’t left yet, your flight and hotel will automatically be canceled, so you don’t have to do anything.  If you are already here, we recommend you depart as soon as you can before the storm hits Friday.  If you need help, let us know. Email us: rsvp@theracetoyes.org.

This community has faced every obstacle, and now we can add Mother Nature to that list.  But we must stay the course.  When the AdComm is rescheduled, WE NEED YOU.  Right now, we are going to focus on getting people home, but please know that we are in constant communication with the FDA and other stakeholders.  We won’t stop until we win this race.

We will be in touch about next steps.

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