Testimonies for Sarepta’s Advisory Committee Meeting
January 5, 2016
Please read the testimonies below that will be shared for Sarepta’s Advisory Committee. These testimonies are important because they are provided to the panel who is responsible for making a recommendation to FDA on the approval of eteplirsen.
Is your son or daughter, brother, sister, niece, neighbor exon 51 skip amenable? Are you waiting for #Eteplirsen to be approved and want a voice in the process? Please post a video testimony on social media and make it public! Then email the FDA care of Ms. Choi PCNS@fda.hhs.gov and cc us at Makeduchennehistory@gmail.com and firstname.lastname@example.org. Let us know if we have permission to share your testimony with the media! Together we can make the FDA listen to every voice. Deadline is January 7th, so do it today!
ChadLuft Video Testimony
Jacob Kelly Video Testimony