Jett Program for Pediatric Neuromuscular Disorders
Jett Program for Pediatric Neuromuscular Disorders (JPPND) is a collaborative effort of the Jett Foundation, a leader in the fight against Duchenne muscular dystrophy (DMD), and MassGeneral Hospital for Children, a world-renowned academic medical center.
The JPPND was created to provide state-of-the-art interdisciplinary care to children affected by DMD and other complex neuromuscular diseases. While providing coordinated care for children, the JPPND team – which comprises specialists in neurology, cardiology, pulmonology, endocrinology, genetics, and nursing, as well as allied health professionals including a physical therapist, orthotist, dietician, and social worker – also works collaboratively to advance research and provide education which will lead to better understanding and treatment of DMD and other neuromuscular diseases.
The JPPND is a circle of care for the whole child and family, providing:
- A supportive network for parents and families facilitating communication, sharing information, and fostering networks through the Jett Parent Association, led by Jett Executive Director, Christine McSherry RN
- The application of “bench to bedside” research
- Open and frequent communication with the patient’s community-based care providers
- The infrastructure necessary to conduct clinical trials;
- And an exchange of knowledge through teaching and mentoring future clinician-scientists necessary to advance treatment of this debilitating disease. The JPPND offers a renewed sense of spirit and hope for this and future generations of boys with DMD and children with other neuromuscular disorders.